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Headline

GPC calls for urgent talks over public awareness of care.data scheme

Comment

Looks pretty clear that the public don't really understand what is going on which is a problem in itself - Dr Nagpaul is clearly on the case and I am sure we all wish him all the best. Once informed I would encourage the public to consider the risks on both sides of the argument about anonymised (statistical?) data sharing before concluding on a view.... On one side...the risk that we as a nation fail to prevent death or disease, or are at least impeded in doing so, on account of lack of information. On the other side...the risk that information governance infrastructures fail and data confidentiality is breached in some way and that individuals are embarrassed, inconvenienced or even harmed. However the real issue for us as patients is "why are the A&E, Out of Hours and ambulance teams still not able to access [FULL and NON ANONYMISED] records that would be helpful (or possibly critical) if they were unconscious and in a life threatening condition"? Most members of the public mistakenly assume that they can. On either argument should the sensitivities of the vocal few deny benefits for the masses? Giving an Opt Out caters for both and is a pragmatic solution; whereas Opt Ins are hugely expensive for the tax payer (circa £65m for each Opt In if you assume £1 per letter/envelope/postage - ignoring the many other costs of administering such a process).

Posted date

18 Feb 2014

Posted time

11:57am

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