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Debate: Should GPs back


Different issues here (Claire, you're too young to remember GPs not computerised in 1980.. ;->) 1. there is a lot of useful information in GP records, and there is support for using this for the Greater Good (see Publications "Fair Shares for All") BUT "the devil lies in the detail" 2. when dealing with "big data" there are a great many issues - what is colected, how it is curated - in every sense - how and where it is linked to other datasets - how it is rendered totally reliably de-identified - and not re-identifiable - the uses to which it will be put and the regulation and mechanisms for approving these - and potential recipients. Unfortunately these were not established and/or publicised *before* the programme was started. 3. Trust. If there is no clarity about either the governance or the uses to which PCD (Personal Confidential - and identifiable - Data) will be put, who decides and who will receive it - or even the form in which it will be made available - Trust from the public might be hard to establish. 4. Benefit vs Risk: this depends largely on the Trust issues in 3 - but if you want support from data subjects (i.e. *patients*) a clear assessment would be a good foundation document. 5. Proper information to public - and to the GPs who are obliged under the Directions issued by NHS England under the Health & Social Care Act to allow the upload of their fully identifiable PCD - about the whole programme (It could have been made so exciting and sexy.... ;-<) see the Health Select Committee evidednce sesion:- especially the second panel of Dan Poulter, Tim Kelsey & Mark Jones from HSCIC. I sympathise with Rosie Cooper MP:"I have opted out because I just don't trust you!" Pity: concept (use of data) sound: shame about the implementation to date - and the apparent failure - in the committee session - on the part of TPTB to acknowledge in any way that the whole programme - and not just the publicity - needs a very serious refurbishment.

Posted date

25 Feb 2014

Posted time