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700,000 patients continue to have data sharing objections ignored


The whole problem arose from the wording of the Type 2 optout - which was supposed - and promoted - as refusing permission for identifiable data to leave the HSCIC*for secondary uses*: Terminology - for some unknown reason, either deliberately or inadvertently - managed to get the "secondary uses" bit into Type 1 optouts (identifiable data leaving the practice) - but not into the Type 2 opt out. I suspect that the introduction of the "single GP dataset" being developed by the Expert Reference Group (I still haven't found any TOR, membership or outputs from this group) will supercede this discussion: hope I'm wrong. If anyone is sad enough, have a look at the Care Data Program Board papers for November 2015 The October minutes show the abolition of the Care Data Advisory Group and establishment of the Strategic Overview Board (Chair Lord Darzi, meets quarterly, draft TOR to be circulated to Board members) - as AOB: and the Highlight Report is very interesting - including about the single GP dataset & planned public consultation...

Posted date

06 Feb 2016

Posted time