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GP practices ‘despondent’ as they struggle to meet terms of patient participation DES

By Andrew McNicoll | 18 Aug 2011

Exclusive GP practices are confused and overburdened with paperwork as they struggle to meet the terms of the patient participation DES introduced in this year's contract.

Just four months after the DES was launched, practice managers contacted by Pulse are questioning whether the terms of the new service are too prescriptive and whether they are ‘in the true spirit of patient participation'.

Pulse revealed in June that only four in ten GPs are shunning the new £60m DES, even though it will result in a loss in income as the funding for the service came directly out of a reduction in payments for extended hours.

Sheila McLean, a practice manager in Basildon, Essex, said:‘The DES is a huge issue at the moment. I went to meeting about it with 30 other practice managers and there was a sense of total despondency over some of it.'

‘It is just another way of putting practices under pressure to address patient access. It involves massive amounts of paperwork – you have to show evidence that you've tried to do everything you could to recruit patients from all elements of your practice population. You do all of this and you end up with £1.10 per patient which is nothing compared to the time and resources you put into all of this.'

‘There's confusion about so much of it. We don't know how many surveys to do. Someone at the PCT suggested we do about 5% of our patient population, another suggestion was that we do 100 surveys. It feels a bit like we're asking how long is a piece of string?  It is unclear about whether we have to set up virtual patient groups or meet with people.'

‘Virtual groups sound good in principle but your group is meant to be representative of your patient population – if you do it via the internet you're already excluding people who aren't online. The message seems to be do a survey, put it on your website and then get paid – but that isn't, to me, in the true spirit of patient participation.'

In the midst of the confusion, the Family Doctor Association has launched a new factsheet and sample questionnaire to support practices, many of whom ‘didn't know where to start' with the scheme.

Moira Auchterlonie, chief executive of the FDA, said:‘We recently held a meeting of over 50 practice managers and the feedback was that people didn't know where to start with the patient survey.'

‘When the new QOF was announced this was the main area of concern because it is completely new. With the materials are providing we want to give practices a starter for ten, we want to make it easier for them to get this up and running.' Click here for the guidance.

Practices using NHS Choices as their website flagged up fears that they would be hit by £300 bills for website design in order to fulfil the DES's requirement to post patient survey results on a dedicated practice website.  The DES guidance states that ‘where a practice does not already have a website one must be set up' and the BMA has confirmed ‘it will not be sufficient for practices to use their NHS Choices page to publish information relating to the DES.'

Jane Hemblade, a Practice Manager in West Sussex, said her practice used NHS Choices as its website but had been told it won't be paid for the Patient Participation DES unless they create a new dedicated site. She told Pulse:‘We use NHS Choices as our website but now we are told that it is not considered good enough for practices to utilise for the Patient Participation DES.'

‘We are now obliged to sign up to web site providers, possibly to the tune of approximately £300, or we will not be entitled to QOF payments despite carrying out the work.'

A BMA spokesperson said:‘The DES guidance specifically states that "Where a practice does not already have a website, one must be set up". It will not be sufficient for practices to use their NHS Choices page to publish information relating to the DES.'

‘However, it may be that practices setting up a new website will take some time to do so and it seems reasonable for them to share their opening hours information on NHS Choices until this is achieved. It would also be reasonable for practices to develop a shared website, for example as part of a commissioning group, as long as the information about individual practices was clear.'

Get advice on the patient participation DES at Pulse's Bold Practice Management Seminar.

READERS' COMMENTS

Anonymous, GP Partner,
18 Aug 2011
Let me get this right. For recruiting patients from our list ,who are interested enough to feel they have the right to tell us how to work, we are charged £300+ to set up a website and have to have regular meetings with them, no doubt in the evenings or at weekends. In these meetings we will be told that patients think'' it is unacceptable that little Johnny has to wait more than 3 days to be seen with his sore throat of 12 hours duration. In addition in this day and age why cannot our own doctors provide 24 hr cover to us the consumers. The Daily Mail spells out just how much we get paid and its time we invested this money back where it matters''

For the privilege of these regular ear/GP bashing we get paid £1.10 before deductions for tax/NI/supperan/costs to minute the meetings/costs to publish them on the web page etc etc.

You must be crazy to take on this. Just do a couple of sessions in the local OOH service and you will clear more profit for yourself!
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Anonymous, GP Partner,
18 Aug 2011
Try £2000 to set up a website.
We set up a virtual PPG - 25 patients agreed to be on the e-mail list. We had just 5 responses from these 25 from our first request for suggestions. All related to telephone access and appointments and were no more than misinterpretation of what we provide anyway. If it carries on like this it is money for little work and pointless!
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Jon Fox, Practice Manager,
18 Aug 2011
£300 for a website - have a look at Microsoft Office Live Website Builder Tool. It costs £0.00 to set up and run a practice website.
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Amanda Sayer, Other healthcare professional,
18 Aug 2011
We have had an active Patient Group for 5 years and when we set it up there was no payment. The group is an integral part of our Practice and we work really well together.
Together we make things better for the patients and the Practice. I have worked with our PCT to give Practices support and guidance around the DES. Once patients have a better understanding of the complexities of what we do in Primary Care they become our greatest supporters. The only other thing that I would add is that, like setting up any other service, patient participation takes time, effort and planning.
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Hugo Minney, Practice Manager,
18 Aug 2011
At first sight it's a bit of a mouthful, but when you look closer it is just about engaging with patients properly.
We've had a representative patient group for years, they meet quarterly and write a newsletter quarterly, so the meetings are focused and have a purpose. Face-to-face meetings for groups that work best that way (eg retired, disabled, youth - separate meetings) and virtual for people who can't come to meetings.
It's so successful that I'm offering the planning, support, patient survey and newsletter to other GP practices locally for #1300 plus 30p/registered pt, which means they can focus on the relationship not the hard work.
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Anonymous, PCT,
18 Aug 2011
‘It is just another way of putting practices under pressure to address patient access."

Good because until that is addressed all the issues around A&E attendances, MIU's etc are meaningless. Patients will take the path of least resistance to access medical care if they feel they need it. This maybe a number of appointments issue, or as Carson suggests a process issue and practice investment in phone systems and the staff to use them at the right time of day.

Until, in the patients view, their GP is the easiest way to access medical care then major service redesign and all the other good things that people want to do will be a pipe dream.
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Derek Bradbury, Work for third sector,
18 Aug 2011
I sympathise with practice managers struggling with this DES, which sets out some intricate demands, laying great stress on representativeness but doesn’t define it. Properly it means that the selection method is unbiased, and randomisation is the way to do it.

Ten years ago I ran a local patient survey, with 76% response, leading to a programme for the new participation group and a patient panel (like the Patient Reference Group concept of the DES.)

A repeat exercise is under consideration, together with similar efforts in some other local practices. I am now secretary of the patient group and a lay member of the emerging clinical commissioning team. As a retired statistician with survey experience I was asked to describe how to set up representative panels and surveys, with particular reference to the DES. The resultant report is about 10,000 words, detailing appropriate survey methods and trying to dispel some common misconceptions.

I am happy to make this report available freely to any practice manager requesting it, on an “at your own risk” basis. One of the risks is that managers authorising DES payment may not have statistical advice: on the other hand they might! Email me: bradbury@tesco.net.

Since writing the report I have found a recent NHS commissioned survey by the Picker Institute on diabetic patients which for the postal part used very similar randomisation and selection methods to those I recommend in my own report. See the relevant parts of
http://www.ic.nhs.uk/webfiles/Services/Diabetes%20Patient%20Experience%20Project/DPEP_final%20report%20Mar10.pdf
And
http://www.ic.nhs.uk/webfiles/Services/Diabetes%20Patient%20Experience%20Project/DPEP_Guidance%20manual_mar10.pdf

Derek Bradbury
chartered statistician, chartered scientist
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Anonymous, GP Partner,
18 Aug 2011
I'm just so very glad to be a GP in Scotland where Commissioning and this overcomplicated and silly DES are, along with the riots, something we read about but don't have to experience!Yes, on average we earn a bit less but I think this is more than compensated for by quality of working life.
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David Mcbride, Manager,
18 Aug 2011
I would add my comments in support of Hugo and Amanda above. Patient participation takes time to work. It is inherently valuable for quality improvement regardless of any payment incentives. When it is approached with a clear vision of how to get the best from patients and a real commitment to integrate it with the work of the practice it can be invigorating for the whole team. In 3-4 months we have established an online forum and a face to face group that meets monthly. It was not too hard to be representative. It was not hard or expensive to set up the forum or the face to face meetings. The value we have had back in a short time is immense.

Other contributors are right in that patients will necessarily focus on aspects of the patient experience. Our patients have chosen (with guidance) three areas to focus on: privacy and dignity, communications and customer service. They have attended staff training sessions and made issues real for staff. Our patients are not experts in clinical safety, value for money or clinical effectiveness. They realise they can only contribute where they are experts. When it comes to patient experience our patients are every bit as expert as our staff. I can't imagine great companies like Tesco or Apple contemplating life without customer feedback and involvement.

At the next meeting of our PPG the members will agree the content of the patient survey (build around these 3 priority areas) and how the survey is conducted. Our PPG DES is well on its way to being secured for 2011/2 and will ensure income is not lost at a critical time. To date the time commitment from GPs and nurses to the group has been nil. This work can be organised efficiently by a committed Practice Manager without significant burden to the practice. I strongly recommend those practices 'shunning' this DES to reconsider a) how simple it can be b) how useful it can be c) how valuable the income is in straitened times.
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Peter Bullivant, Work for third sector,
18 Aug 2011
In our work on practice engagement we have found that although there are real concerns, particularly around ensuring that a few vocal individuals do not dominate 'patient voice', where GPs are actively involved there is almost universal agreement on the merits of patient engagement. Indeed, if practices can develop patient reference groups in line with the DES, this will also support clinical commissioning groups to meet a key part of their requirements for authorisation. Our experience with practices has shown that it can be relatively simple to set up and use a PRG to get a range of opinions and not just the traditional voices. A PRG can allow the use of more modern techniques of engagement such as social networking and there are simple, free ways to do this through NHS Networks at www.networks.nhs.uk.

If CCGs are forward thinking they can support practices in the development of their PRGs to support their key role of patient, carer and community engagement. They can achieve this through direct support or toolkits such as the PCC one at www.pcc-cic.org.uk/providers.
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Richard Banyard, Manager,
19 Aug 2011
Methinks that some of the adverse comments about the DES are missing the plot a little ..... why not regard it as a way for a practice to receive first-hand feedback from their punters on likes/dislikes/ideas/suggestions? This will help make sure that patients are retained on lists (hence securing income), also and hopefully new ones can attracted (hence more profit)? In short, consider the process as basic marketing. And a chance to be actually paid for doing marketing, which is a privilege very few other organisations ever have!
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