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GP records to be shared without patient permission to tackle 'high cost' patients

Exclusive Identifiable information from GP records will be shared without patient permission under a new local care.data-style scheme to intervene in the care of ‘high cost individuals’.

Pulse has learnt that NHS Southend CCG hopes to start extracting identifiable data from GP records next month, with the aim of identifying ‘high cost’ patients and reviewing their care.

The CCG says it is the first scheme of its kind to extract, link and share identifiable information in GP records for use other than direct patient care.

But GP leaders have questioned the focus on cost, rather than the quality, of patient care and Pulse has learnt that patients will also not be informed about the data extraction in advance and will have to ask their GP to opt out if they are not comfortable with identifiable information from their medical record being shared.

The model is similar to that of the troubled care.data scheme that NHS England was forced to delay indefinitely after a furore over the scheme that would have seen identifiable data from GP records routinely extracted and used by the health service unless patients asked to opt out.

Pilots of care.data have yet to begin, but health managers have already admitted they have been unable to implement 700,000 patient opt-outs to GP data being shared, with GP leaders claiming that their admission demonstrates the ‘mess’ that the Government has created.

The NHS Southend scheme will identify patients with complex care needs though their NHS number, age and post code, with the aim of ‘reviewing’ their care. The scheme will also extract data including the number of appointments with the GP or practice nurse, prescribed medications, and unplanned admissions for individual patients.

The CCG will not send letters to patients to let them know of the record sharing scheme, instead, a CCG spokesperson told Pulse that its ‘comprehensive communications plan’ included informing patients via local and social media, public events and signposting in GP practices.

NHS Southend CCG’s governing body minutes state that over the last 12 months, the CCG and Southend-on-Sea Borough Council have been applying to share data for the purposes of ‘identify[ing] high-cost individuals whose care may need to be reviewed by a multidisciplinary team with whom they have a legitimate relationship’.

Other reasons included identifying those with ‘abnormal or perceived abnormal outcomes, for example emergency admissions’, ‘commissioning best value, new services by identifying populations of patients’ and ‘assess[ing] whether new services are having the desired outcomes’.

When asked about the cost cutting objective, a spokesperson for the CCG told Pulse: ‘Our main aim, through data sharing, is to improve services and the quality of care to patients with multiple care needs.’

‘Quite often the reason an individual’s care is high cost is because they are receiving multiple services but all delivered separately. By reviewing data across the system we will be better placed to see opportunities to join up health and social care services and provide patients with a single package of care.’

But the record sharing scheme has yet to receive approval from Essex LMCs, who told Pulse they had consulted the GPC and sent a letter to the CCG raising concerns over how the information would be used.

The letter - seen by Pulse says: ‘What is the exact purpose of this over and above risk stratification? And specifically, which non-practice personnel will access the data?’

Dr Andrew Mimnagh, vice chair of NHS Sefton CCG, said his CCG also undertakes risk stratification but questioned the emphasis on cost in the Southend scheme.

He said: ‘The ethos for the ones we’re doing is optimising patient care, getting it closer to home. It makes you sit up and think, when you see it put so baldly: “we will be looking at the money”. I wonder how much of that is a product of the area, whether it’s all about he money in that area.’

Readers' comments (24)

  • My concern is over legacy dissent codes not being taken into account with a similar scheme in the Midlands.

    Don't have a problem with the extraction of details per say, it is for the good of the patients and the health economy as a whole, so the only issue is that old dissent codes must be complied with.

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  • Can the data act be changed so that these things can happen? also enshrine in law that data taken without the patients or GP's permission take responsibility away from the GP in case of future lawsuits or any potential problems.

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  • Now its clear to me..............!!!
    I was somewhat confused when I read that a 7th principle had been added to Caldicotts previous 6 principles. That being..................

    "The Duty to share information can be as important as the duty to protect Patient confidentiality."

    It confused the hell out of me until this headline now its completely clear (as Mud).

    All those hours completing the Information Governance toolkit every year and then.......................... bang...... forget all that tosh this is the way its going to be from now on..................... Sod confidentiality!!!

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  • I am afraid with all schemes that share data without consent how can any patient EVER trust their GP?

    Also if the GP is the Data Controller where do they stand legally with things like this. All it needs is one patient to sue the GP.

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  • Agree with NHS manager @ 11.37.
    Why are practices burdened with time-consuming information governance bureaucracy when some NHS bureaucrats can just grab whatever info they fancy off our clinical systems anyway?

    It's a complete joke, goverment makes huge demands of us for confidentiality and then they drive a coach and horses through it for themselves.

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  • WTFWTFWTFWTF
    Sorry if I sound a bit annoyed/angry
    But really - have we ( German, English etc ete )
    not learned anything
    PRIMUN NIL NOCERE - should be the rule that rules us
    again, what the PHUQ ??

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  • Vinci Ho

    The true colour of care.data?
    Or as usual to some , Pulse is 'scaremongering'?

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  • Vinci Ho

    I know my answer

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  • You guys need to look at data protection act. Esp (if I remember right) schedule 3 & 4 which already states this can be done.

    To be honest, most people's credit card numbers & personal details can be easily found on line and sold (obviously, not legit). Containing medical records to local surgery and not sharing is hardly going to protect a person's privacy. More likely to cause harm b not having appropriate information at the right time (which is the pint of Caldicott2 recommendation)

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  • I personally had strong feelings against care.data but this is not care.data this is something completely different. Why shouldn't the NHS be able to look at the care of high cost individuals? It seems quite a logical thing to do when there's a shortage of money which I believe there might just be!

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