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Campaign calls for patients to choose who can access their GP record through care.data

Campaigners are calling for pilots of NHS England’s flagship GP record sharing scheme, care.data, to be halted until further safeguards to block information sharing with private companies have been implemented.

Campaign group 38 Degrees is looking to develop a website to help people opt out of the scheme.

In a message to their supporters, 38 Degrees said care.data could be used to improve the NHS. However, it added: ‘Right now, NHS England won’t let us decide who gets our data: NHS doctors and researchers, or private companies.

‘If the pilot goes well, Care.data will be rolled out across the country. Together, we need to stop it now - and get it fixed - before it goes national. NHS England could change the system so that we can opt out of private companies getting our data. So let’s make sure they do.’

A spokesperson for NHS England told Pulse: ‘We are working hard with pathfinders who have agreed to test out communications with patients. We’re also talking to 38 Degrees to understand their concerns.’

Readers' comments (7)

  • 'talking to 38 to understand their concerns'.what utter nonsense the concerns have been understood from the start but NHS england seem determined to treat people as research fodder with no rights over their own information. not just their own but information which will often implicate others in their lives.this group of immoral gigots is a disgrace to UK democracy

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  • The best solution would be for the electronic care viewer modules we're all supposed to be working on to include a series of opt in/out choices for SCR, care.data, and a million and one other potential data sharing options. Patients could then be given the option to switch at will, and remove both the responsibility and administrative burden from practices.

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  • very nice, we are struggling to offer appointments and sort out home visits for our own registered patients, and not sure how this will work
    I am alright, NO, thank you ..

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  • So if university students come home for the holidays we can charge NHS England £16 for doing their pill check,brilliant!!

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  • After superAnn and tax it's only £20.

    Thos wil potential get rid of practice boundaries and after a few years practices will be expected to do it for nothing.

    I wish all GPs would turn around and say no and send a clear message to the government.

    Though I know a lot of GPs will just sign up to chase a few pounds and not look at the bigger picture.

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  • So that is valuing the surgery time at £96/hour. Think what solicitors charge.

    I don't think this leaves much profit.

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  • 1. What happens if all practices refused?

    Our area is covered by only 2 practices, I suspect neither will be signing up to do visits for 60 pounds a go.

    2. Does it apply to all patients (all TRs) or just those who are at their own home and registered elsewhere?

    3. Can we ask all 10000 of our patients to register at another surgery, then we can register all the patients from their surgery. Then everyone gets paid 16 pounds per appointment + the GMS baseline? (This one is pretty optimistic),

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