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Care record advice on 0845 hotline
23 Feb 10
Exclusive: Patients have been told to call a paid 0845 hotline number if they want advice about how their electronic records will be used by the NHS, after Government IT managers reneged on promises to provide detailed information, Pulse can reveal.
GP leaders are frustrated at how the mass, fast-tracked rollout of the Summary Care Record is being handled, with NHS managers failing to provide promised information to millions of patients and thousands of GPs.
Plans to upload more than 10 million records across England in the next year have begun with patients told to go to their GP practice if they want to opt out of the database, even though those in charge of the rollout admit many GPs are in the dark about the process.
Pulse has learned that in the capital, where NHS London has begun writing to six million patients, patient information packs have not been produced as promised, with allegations it is down to a lack of funding.
Patients in Greenwich, Bexley, Southwark, Waltham Forest and Bromley have become the first to receive letters directly from NHS management under a change of tactics. Connecting for Heath is providing millions to cash-strapped NHS bodies, also including North West, North East and East of England SHAs, in a desperate attempt to speed up the rollout.
The letter gives patients 12 weeks to opt out by downloading a form from the internet or ordering it from an 0845 number and taking it to their GP.
‘Your GP may not have much detailed information about the care record at this stage,’ admits the letter, advising patients they can get full details by returning a form in a pre-paid envelope or calling the number.
Pulse called the number and no warning was given over call charges, which we learned would be at national rates as high as 20p per minute.
Dr Michelle Drage, joint chief executive of Londonwide LMCs, said: ‘We understand there is no money available to support practices. We continue to raise our concerns about the programme.’
Previously, Connecting for Health had stressed the importance of patients and GPs getting detailed information, with Dr Gillian Braunold, clinical director for the Summary Care Record, telling Pulse ‘letters alone are not enough’.
Kevin Jarrold, programme director for NHS London’s Programme for IT (LPfIT), said in December it planned to ‘co-ordinate information packs for patients’, and would ‘discuss information packs for GPs’.
An LPfIT spokesperson denied lack of funding had stopped those plans, but admitted: ‘We recognise GPs may not have much detailed information at this stage, so patients are being directed to the NHS Care Records service helpline on 0845 603 8510 and the website.’
The spokesperson added that GPs would be offered training when the Summary Care Record went live.







Readers' comments
My wife has already rung this hot-line to be told to ring her GP as she wants to 'opt out' the children. I have no idea what to do as I'm sure her GP doesn't. I await the increase in consultations about this and will squeeze then in between those QoF reviews, the pre-books, the on the day-books and the actually needing a doctor to deal with the issue
I sincerely hopes this works out better than paper. At my local hospital, my huge file (seriously huge, after many years of monthly clinics), vanished in the mid-Eighties. A new one was created and began to grow. Then the old one then reappeared. After several years of fruitlessly asking that the two be combined, the old one repeated its vanishing trick and never reappeared - that's half a lifetime of records from the age of 10 to 43, gone forever. One minor but annoying side effect of this is that I repeatedly have to explain that my COPD isn't due to smoking but to bronchiectasis and asthma. If electronic record-keeping improves on this pathetic state of affairs, I'm all for it. I'm not taking any bets, though.
I can sympathise with Ronald Graves' frustration over his hospital records - but this is a situation the Summary Care Record was not designed to address. If the whole project survives after the election (could there be a relationship to this sudden desire to accelerate the whole process?), the first stage would resemble the Scottish Emergency Care Record - medication and adverse reactions only. Phase 2 would (without further patient consent) upload details from the GP record, if there was assumed consent i.e. no opt-out from the patient, and in any case, information from secondary care such as discharge letters: it is not clear how, in the state of development of the IT, this secondary care only SCR will be prevented when a patient has opted out at the surgery, as the Read Code preventing upload from the surgery will not be available to secondary care. PCTs appear to have been as surprised by this sudden announcement and lack of planning as GPs: it *must* be the election!